CHAPTER 3: OPEN DATA AND HEALTH: WHAT ARE THE MODALITIES FOR THE DISSEMINATION AND USE OF HEALTH DATA?

Agnès ROBIN

doi:10.54695/jib.32.02.6686

CHAPTER 3: OPEN DATA AND HEALTH: WHAT ARE THE MODALITIES FOR THE DISSEMINATION AND USE OF HEALTH DATA?

Authors

Agnès ROBIN Maître de conférences HDR en Droit privé à l’Université de Montpellier (ERCIM/UMR 5815) Directrice adjointe de l’UMR 5815 « Dynamiques du Droit » Directrice du Master Droit de la propriété intellectuelle et du numérique Chargée de mission à l’Institut de Science des Données de Montpellier (ISDM) Directrice du DU « Scientific Data Management » Co-directrice du DU « Legal Tech and Law Innovations »

DOI:

https://doi.org/10.54695/jib.32.02.6686

Keywords:

Personal data, Open data

Abstract

The dissemination and use of health data firstly questions the production of health data and, in particular, the production of health research data. In addition, talking about the openness of data also requires understanding how health data are produced at the scientific level and especially how the dissemination of this production has been regulated by the legislator. Finally, it should be remembered that health data, including health research data, are most often personal data, to which a legal data protection system applies which is currently governed in Europe by the General Data Protection Regulation.

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Published

2021-07-07

How to Cite

ROBIN, A. (2021). CHAPTER 3: OPEN DATA AND HEALTH: WHAT ARE THE MODALITIES FOR THE DISSEMINATION AND USE OF HEALTH DATA?. Journal International De bioéthique Et d’éthique Des Sciences, 32(02), 33. https://doi.org/10.54695/jib.32.02.6686