AVAILABILITY OF HEALTH DATA – THE SAGA CONTINUES

Abstract

Confusion dominates the debate on healthcare opendata
in France. Mainly because, at a medical level, the data
now includes administrative information from the SNIIRAM, from the mandatory Heath Insurance systems and,
tomorrow, from medical devices and private services. A
new statutory National System, controlled by
Government, the National Health Insurance and other
public entities has been created to host all the datas in a
huge repository to ensure data openness and privacy protection. The reuse rules favour Public Health and
Research and limit private actors access. In front of a growing demand, slowing data openness would limit the
expected sanitary and economic gains and prevent being
able to deal with new services. National, European and
international reflections are much needed.